Kate’s presentation was a very interesting specialized topic. It was very interesting to see how they handle health data, mainly because I really had never thought about health data handling at all. It’s very delicate and complex data and I really liked how people at PatientsLikeMe are doing things.
Here are my notes:
- Eight out of ten users look for health information on the internet
- The goal at PatientsLikeMe is to make people know what they can do about their state and how.
- It’s important to make it easy for people to create data
- Easy to answer questions with no jargon
- You can’t always make it extra simple, but you don’t always have to ask too much information.
- Let people use their own meaningful language
- Highlight the benefits of sharing data – Let users know what they do on the site is worthwhile.
- For every piece of data that is asked, something can be given to the user in return. (example: answer the ‘I have’ question to find patients with your condition).
- Patients can see themselves in context and find out the degree to which their symptoms are common.
- Help people use data to answer their questions
- PatientsLikeMe helps people know the outcomes of different actions they can take regarding their state.
- People can learn through the experiences of other people.
- People can end up answering questions they never really thought to ask in the first place.
- Don’t be afraid to experiment
- Be willing to fail while trying stuff you’re not sure about.